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Parent perspectives of the voiding cystourethrogram: A three-part prospective survey study

Login to Access Video or Poster Abstract: 611
Date & Time: May 20, 2012 03:30 PM
Session Title: Pediatrics: Imaging (Genital & Urinary Tract)/Infections and Vesicoureteral Reflux
Sources of Funding: None

Introduction and Objectives
The VCUG is an invasive procedure that is uncomfortable and distressing for the pediatric patient. We aim to assess parent preparation prior to VCUG, identify any correlation between being informed, or having had a previous VCUG experience, and parent/patient distress level, and to investigate perceived changes in children’s behavior after the VCUG.

Methods
We conducted an IRB-approved prospective survey study. Three separate surveys were administered to parents of 45 children: the pre-VCUG survey was administered before the VCUG, the post-VCUG survey was administered within 30 minutes after the study, and the 2-week post-VCUG survey was a telephone survey administered 2-4 weeks after the VCUG. The first two surveys were investigator-generated; the 2-week post-VCUG survey was a modified version of a validated survey, Posthospital Behavioral Questionnaire. Survey items were both 5-point scaled and open-ended questions. Demographics, previous experience with VCUG, and having been educated about VCUG were assessed. Statistical analyses were done using STATA 7.0.

Results
Our populations consisted of 32 female and 13 male patients (mean age: 2.8 years) Thirty-two parents/guardians identified themselves as white and 13 as non-white. Nineteen parents/guardians interviewed had children who had undergone a previous VCUG. Twelve parents (27%) reported having had no explanation about the VCUG by a health-care provider. Fifteen percent of non-white interviewees had received an explanation compared to 84.9% of white interviewees. Parents with previous VCUGs experience and those who had been educated anticipated more pain (3.58 vs. 1.88, p = 0.001; 0.77 vs. 3.31, p value = 0.001 respectively). However, informed parents accurately predicted the perceived pain level their child. Of the 35 parents who completed the 2-week post-VCUG survey, 11 (31%) noticed changes in their child's behavior. Eight of these eleven parents were worried about those changes.

Conclusions
We conclude that a significant number of parents are uninformed about the VCUG, which influences their expectations for the procedure. A target population to consider improving access to information is the non-white population. Although education prior to the VCUG or a previous VCUG experience can increase parent anticipated pain for their child, which may contribute to increased stress for parent and child prior to the VCUG, it is important to inform parents about the procedure so they have reasonable expectations.

Authors
Aguiar, Liza (Providence, RI); McCarten, Kathleen; Meyer, Elaine; Ellsworth, Pamela; Caldamone, Anthony 
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